Ep133: What is Genomics and why we should care that it's done ethically with Dr Natalie Banner is Chief Ethics and Engagement Officer at Genomics England
Description
On today's show, Steve Roest, CEO of PocDoc speaks to Dr Natalie Banner is Chief Ethics and Engagement Officer at Genomics England, an organisation owned by the UK Government to provide the evidence and digital systems to drive advances in genomic research and medicine, and to support the implementation of genomics in healthcare.
Genomics is being hailed as one of the big developments that will usher in an age of health, wealth and prosperity, but do you really know what it means? And what the ethical issues are around mapping our entire genetic structures?
Natalie is responsible for helping Genomics England navigate the complex ethical challenges that arise at the intersection of genomic technology and care, ensuring that the organisation is a trustworthy steward of participants’ data. This includes oversight for research regulatory compliance, extensive public and research participant engagement work, improving transparency and embedding meaningful approaches to equity across its programmes.
Natalie has over a decade of experience in the ethics, policy and governance of emerging data-driven health technologies. She previously led the ‘Understanding Patient Data’ initiative based at the Wellcome Trust, as well as the research sector Parliamentary advocacy on GDPR as it was being taken up into domestic law. She has a PhD in Philosophy and previously worked on conceptual issues relating to mental capacity and decision-making in clinical contexts.
United States
